We are the warriors of the butterfly under this mask,
you will hear us roar as we fight our battles,
with every ounce in our soul,
purple is our color and it will raise high above us,
as we bare our weapons to fight and live another day,
when the sun rises we fight,
when the sun goes down,
our scars will appear on our body;
under the moonlight to show that we the warriors of the butterfly,
underneath this mask have lived and fought to see another day,
now its time to rest again,
so we the warriors of the butterfly can fight and live for another day,
as the warriors of the butterfly underneath this mask.
By: Miriam DLJ
Lupus is a chronic inflammatory disease that occurs when your body's immune system attacks your own tissues and organs. Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.
Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of lupus — a facial rash that resembles the wings of a butterfly unfolding across both cheeks — occurs in many but not all cases of lupus. Some people are born with a tendency toward developing lupus, which may be triggered by infections, certain drugs or even sunlight. While there's no cure for lupus, treatments can help control symptoms. Read more on: _ http://www.mayoclinic.org/diseases-conditions/lupus/basics/definition/con-20019676 Q: What is Fibromyalgia?
A: Dictionary: >>fi·bro·my·al·gia ˌfībrōmīˈalj(ē)ə/ noun
>Fibromyalgia is a common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues. Fibromyalgia has also been linked to fatigue, sleep problems, headaches, depression, and anxiety. Read more on: _ http://www.webmd.com/fibromyalgia/guide/what-is-fibromyalgia |
Q: Who are the butterfly warriors?
A: Everyday people that have been diagnosed for a long period of time or recently diagnosed. Who make the best of what they can out of life. Q: Is it curable? A: Unfortunately no. Because it varies from each individual that has a chronic illness and is treated based on your symptoms. Q: Why me? A: Its genetics from what I have read its mainly hispanics/latinos along with african americans who suffer from lupus. Its not you you per say its your ancestors that you inherited from. So you can yell at your ancient ancestors and grab some torches with pitch forks at their graves and blame them for this or you can do something extraordinary with the life you're given and fight lupus, fibromyalgia or any kind of illness the only way you can just by taking it one battle at a time. Q: How can I become a butterfly warrior? A: This website that I have built is for everyone that needs support when they need it the most. Its easy just join in the fun and get to learn about how others cope with the illness or raise hell with it. Q: Is there a membership fee? A: No definitely not its absolutely free, for anyone who wants to join in on the fun. Q: So who are you? The one that created this site? A: I'm just an crazy redheaded puerto rican who yells at every single driver that tries to run me over while I'm crossing to get where I need to go. Or that don't use their turn signals. :D Q: Okay so what do I have to do to get in? A: Sign in with your facebook account or e-mail to join in on the forum conversations. In the butterfly warrior section: For Lupies 'Lupus Sucks!' you can (selfie) 1. Flip off lupus with the purple ribbon on it or 2. Write down lupus sucks or fuck lupus on a card with a purple ribbon it. Letting us know you are also joining on the fight to fight pain. Same thing with Fibromyalgia, etc. |
The crazy woman above
is me :D. Hello :) As I wave to you ^_^ Join in on my craziness, frustrations, helpful tips that can help in the blog section. /blog.html About me: /about.html Why did I create this website? because I thought anyone living in chronic pain that is/was a warrior needed a new name instead of victim or survivor. And needed a new face thats not just a butterfly but a warrior underneath that mask that is not a ribbon but a warrior a butterfly mask warrior. Have any questions you need to ask? Just post in the forum, comment in my blogs about that particular topic or in the contact section on top of the page. I look forward to meeting you all. And help as best as I can. - Miriam DLJ. |