So everyone that has Lupus gets the flare effect. It varies each day it starts from when you get up until you go to bed. And it just gets better and better to the point where you can't even move for 10 minutes until your body decides that its ready to move. Gotta get up and move just to take the female medication, multivitamins and fish oil that is supposed to wake you up and control the inflammation the whole lets detangle your limbs and spine from all this mess.
It hurts to move from my experience. This is what my body goes through every time I get up in the morning if I don't get enough sleep as in a full nights rest my whole spine locks up it takes me probably 10 minutes for my body to warm up (basically I can not be in the cold) just so I can move. Lately my arms like in the interior part of the elbow not the actual skeletal part, the muscle and nerves not only sends shocks but also inflammation. I can not unbend my arms when this happens the only thing I can do is just go outside for a few minutes for my body to send a signal to my brain saying," Hello time to hit the reset button!"
Gotta love the fatigues no matter what I do my body feels constantly tired either from home or work I have to eat constantly small portions throughout the day just to get moving. A full meal does and doesn't help eat probably every 2-2.5 hrs to have at least something in my system.
The left and right clavicle ugh. Just stab me why don't you.
I haven't had many problems with the lower part of my body such as my legs, ankle and feet. Only my pelvis motrin slightly works but this is not a menstrual cramp type of cramp more like let me stab you with needles to keep you on the couch or an non domestic animal just bit the shit out of me. Seriously just take it and use it as a frisbie why don't ya?!
It hurts to move from my experience. This is what my body goes through every time I get up in the morning if I don't get enough sleep as in a full nights rest my whole spine locks up it takes me probably 10 minutes for my body to warm up (basically I can not be in the cold) just so I can move. Lately my arms like in the interior part of the elbow not the actual skeletal part, the muscle and nerves not only sends shocks but also inflammation. I can not unbend my arms when this happens the only thing I can do is just go outside for a few minutes for my body to send a signal to my brain saying," Hello time to hit the reset button!"
Gotta love the fatigues no matter what I do my body feels constantly tired either from home or work I have to eat constantly small portions throughout the day just to get moving. A full meal does and doesn't help eat probably every 2-2.5 hrs to have at least something in my system.
The left and right clavicle ugh. Just stab me why don't you.
I haven't had many problems with the lower part of my body such as my legs, ankle and feet. Only my pelvis motrin slightly works but this is not a menstrual cramp type of cramp more like let me stab you with needles to keep you on the couch or an non domestic animal just bit the shit out of me. Seriously just take it and use it as a frisbie why don't ya?!
The fun part the Lupus Fog. I have not a damn clue how many times I've had to reset my password for any website or accounts I have to go through. So now I have to keep a like a small journal like those small stationary that you see in the kids section that has that cheap lock with the neon pen because it stands out so I can identify it as a bookkeeper. Also keep my calendar very very color coded to see what the most important bills are due, to doctor appointments, entertainment bills like netflix, my work schedule. Everything has to be colored I can't look at anything black in white it has to be colored. I can not think on a black and white page because then my brain would like a deer that got hit by a headlight. |
The rash I think I am starting to get the butterfly rash but its too early to tell since I do live under the Texan Sun. But it is almost like the one that the woman in that image is what I am slightly experiencing that but its not as visible yet. I will try to get an image up asap. Along with a short video. |
And this is it from what I am experiencing so far. I can't been seen yet until October to start my treatment. Hopefully something will work to calm down majority of my "illness symptoms". Oh winter is gonna suck so much for me.
Added: 8/25/14 original post 8/22/14
Okay I sorta lied on not sure if I felt pain in my legs or feet. Yeah my brain lied to me. *Pffft* I think its trying to cripple me.
Okay I sorta lied on not sure if I felt pain in my legs or feet. Yeah my brain lied to me. *Pffft* I think its trying to cripple me.