I have decided to take myself off the generic both Cymbalta and Mobic. It has made me lazy, decrease in activity, decrease in appetite, couldn't think correctly, or speak as much as my brain activity wanted to, I didn't want to wake up, awake during the middle of the night hard to fall back asleep, and to top it off there's a class action lawsuit against Cymbalta. So yes I'm going to try something else. So yes Fuck it. I felt useless. Plus I was given permission to take myself off of it, if I felt miserable I wanted to give it a chance for a week but yeah its not working for me. Hot shower it is thats the only thing that works.
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Each medication has a side effect.
Mobic: cause drowsiness and dizziness take with food (okay). Cymbalta: cause drowsiness (fun) Do not take both at once. I was told. Okay let's try this cymbalta during the afternoon, and mobic at night. I felt strange, brain capacity not up to speed, especially at work I couldn't figure out how to sensor the damn clothing. So I flipped it mobic in the morning half dosage, and then cymbalta at night. A little better since I was actually able to take my multivitamin (it keeps me awake). Now lets try the full dosage of mobic the next day I was sleepwalking at work basically ugh. Now I switched back to the half dosage and since its my lovely aunt flow week I can't take my multivitamin (not happy damn birth control iron pills) took it after I cleaned up the house abit. Yay why the fuck am I feeling shocks and extremely tired to where I pass out my my kitten is licking my ear saying hello mommy. Since I have several days off work I am going to see how I should make this medication combo work. Probably eat a little more before taking the mobic and cymbalta or just say fuck it its making me feel like shit on top of my shark week. I hate medication. My specialist doctor declared it Fibromyalgia but Lupus is not in a clear yet since I had a 3rd blood test done reason being because of the false positive that resulted in my 1st blood test which was more accurate because there was enough blood to sacrifice so with the 2nd one I was barely able to produce enough blood as I explained to her and she appreciated my concern of why I did not approve of the 2nd test so for more of a clear test they did their own in their lab to clear it out of my doubt of what I thought was inaccurate. My inflammation was very high and she noticed that I was and still inflaming. So they took 5 more blood samples and she called them an complete idiot for not doing an xray on my spine just my elbow because it first started on my spine.
The medicine that I am being prescribed is Cymbalta and some other medication which I forgot what it is. But she was able to tell numbers wise I do not have Hiv I tested negative for that, I was ranked one point something out of 10 on my blood test for Lupus in the ANA test (antinuclear antibodies). I liked my doctor very much she was very funny, approachable, professional, the staff are very friendly, despite the 40 minute wait in the office. It was nice I was reading about medications for Lupus while I was waiting to be called and the crazy side effect was that it may cause cancer causing agents. I'm like uh no next medication please. I do not need that on top of my chronic illness problem. So I am going to be on a 30 Day trial of Cymbalta to see if that helps me. I return to my specialist within 3-4 weeks to see if that helps. And my blood results. No offense to my primary care physician they should've called me after waiting a month on my blood test to say I tested negative on my 2nd blood test saying we have some good news for you. It was hell that my body was attacking me fully after having my blood withdrawn while its producing more blood. That I think was very unkind while the other medication barely helped. I've had to leave work probably twice early saying I am in severe pain loosing how ever many hours off my paycheck. It was just wrong. So yes Lupus is not out of the clear until October 29th to find out my final blood result. Ugh I'm still inflaming from the blood sacrifices after 14 tubes within 4 months. So I received a letter in the mail the other day. And its from the rheumatology office and its not an appointment document stating I am going to be treated for such and such nope. Its paperwork! I never in my life had paperwork before even entering a doctor's office or specialist to fill out at home. And for once its good because it had at least 10 pages of documentation I had to over look to see what exactly is wrong with me and call your relatives to get their medical history documented to get an idea of exactly what I may have. Okay I have been tested negative for Arthritis, Rheumatoid Arthritis and Diabetes. It has to be something else because someone else in my family has arthritis but I sure as hell don't and I had to kinda argue with my doctor its not arthritis, I don't get the jitters of the I can feel the rain coming no I can smell that before it even starts. So I'm reading and going over this and I'm like wow look at all the medical problems I could have and is listed. And the female section I couldn't even remember when the hell I had my first period. It was that long ago I didn't think it was important as I got older. Oh look I bleed its part of life. Especially when I was screaming in the bathroom telling my mother to come over here and she didn't think it was important as she was watching her novelas (this was before DVRs were invented) until the commercial came. I thought I was dying and then she finally comes in and says oh its just your period. Really? I was bleeding all over the place and you couldn't rush any sooner?! This paperwork goes on and on... list your siblings that are living and or dead, okay then that's a first. Shade the areas that you are affected by. I placed x marks because there were too many areas to shade. I am glad that I got this paperwork not even a month before my scheduled appointment that way it saves me the whole bullshit of fill this paperwork out, unbag all your medication, and enjoy the brain crash. Anybody remember that commercial reference? You should its the this is your brain on drugs. But yes I got to fill out the paperwork which took forever. And other than that crap. I have to deal with a bully that decided to escalate their obsession over my daughter saying if she can't be my friend no one can. Ugh. I don't understand why that little girl is so obsessed with my daughter to the point where she decided to make all the daycare kids turn against my daughter not to be friends and now a new school year has to try to break my daughter's hand. That girl has very jealous issues. Don't worry I work a letter to her parents calling out her their child's bullshit.
If it was that damn simple everybody would be donating blood. Let me tell you why I do not trust the 9th blood test because I have given so much blood within one month I couldn't even fill up the tube not even half. So my doctor after she was so thrilled to tell me it could be possibly fibromyalgia. After one month waiting for a damn blood test result you couldn't have told me sooner? I want to have two negative results not just one positive (first test) and one negative (last blood test) so when I finally see my rheumatologist (yay I spelled it correctly without google!) to get a final test making it a 3rd result to make it an official diagnosis. So when researching Fibromyalgia apparently its cousins with Lupus just by the symptoms alone so here's a chart of the symptoms I've put together so you can see what I mean.
I've added images so you can see. So there it is you can see why I call them cousins. From that I have read that Lupus can be tied in with Fibromyalgia. I can have both or one of the "chronic illnesses" out there.
I am not deleting this webpage I have made or changing it all I'll add Fibromyalgia to the list of topics forum. In the mean time enjoy this image of a three legged kitten that I temporarily and hopefully it'll be permanent soon. This is Riley and he's having an unhappy day. Need a few minutes to laugh or just go aww here ya go! Take a Lead for Better Lupus Treatments!
Learn how at NYC’s first Lupus Trials Fair Clinical Trials for Better Treatments Today and a Cure Tomorrow August 5, 2014 Take a Lead for Better Lupus Treatments! Learn how at NYC’s first Lupus Trials Fair: Find out how you can help bring lupus closer to a cure by taking part in clinical research. Join the Lupus Research Institute and the S.L.E. Lupus Foundation at the first Lupus Trials Fair September 13 from 10:00 – 2:00 p.m. at the Roosevelt Hotel in Manhattan.
Columbia University Medical Center The Feinstein Institute for Medical Research North Shore-LIJ Health System Hospital for Special Surgery Montefiore Medical Center NYU Langone Medical Center The Rockefeller University Talk with representatives from leading research centers currently recruiting for lupus studies; take a lead for better lupus treatment. This free event includes light refreshments. Register online or register by phone at 212-685-4118. RSVP by Friday, Sept. 5 http://lupusresearchinstitute.org/lupus-news/2014/08/05/take-lead-better-lupus-treatments-learn-how-nyc%E2%80%99s-first-lupus-trials-fair Click here >_ It just had to start up again after two months as of May and June 2014 my right elbow acts fractured towards the air conditioner that happened to be blasted more in my department (I work in the baby section) than any of the other sections of the store. Why haven't I bitched about it sooner? Because it just started getting hotter in Texas again in the month of March/April and the hotter it got the higher the air conditioner got kicked up a notch. And only working 20 hours a week along with waiting for the Obama Care process to get through just to have health insurance because the 'United States' demands all Americans to have health insurance. Some say it was crap and I'm happy that I have a good health insurance to help with all the needs that I need more now currently. And I got carried away as usual. So yeah after having 6 tubes for "my physical", 2 tubes for my female physical, and 1 to reconfirm my Lupus. The 6 tubes two days after I have had that done I was crippled me hours before I had to go into work that was fun and half a muscle relaxer. Imagine my day at work and thankfully it wasn't busy. The 9th tube I couldn't pump blood anymore. Now that my blood has "returned" by producing more blood to keep me going. I don't feel the same I seriously don't my blood cells and everything else are attacking each other which is making my whole body which is making me hurt more than that I ever want. Fish oil is supposed to help with the inflammation but it could only help so much.
As for the waiting game I finally got a referral to see a rheumatologist (I almost had that spelled correctly thankfully google fixed it) and they were planning to see me in November I'm like uh no it has to be sooner. So I am going to start my treatment for lupus on October. And I have no idea how I am going to the new medications that they will prescribe for me but hopefully it'll help. So I am waiting for the bus after I had to make an appointment for my daughter's doctor just to get a note to apply sunscreen on her while she is at school. And I am waiting and waiting as the ice cream melts in this lovely Texan weather and I noticed a fellow female stranger sitting in the hot sun and I invited her over to the shaded area so she wouldn't have as much trouble staying in sun when we're waiting at least 10 minutes for the bus. So we're talking and talking and I noticed she had a scar in the middle of her chest. She was talking about being more patient with time, transportation and etc.
And I told her I have semi-lost my patience since moving to Texas because of all the crazy drivers especially during the Christmas season. I mentioned I have to be more patient with Lupus and the funny thing is that she has it as well except hers was more different it was more with her organs reacting. So she was telling me how she had problems with her body making her vomit so many times and that when she went to the doctor they didn't want to test her for anything else thinking its just a minor type of surgery for gallbladder removal. They were going to wait until she reached a fever to test her for Lupus. Let me tell you why this is dangerous. if you have Lupus and your fever gets over 100*F you can die it is fatal and I'm surprised she hasn't sued whoever the hell took care of her and didn't treat her as quickly as they should've. Omfg I would've raised hell if they ever did that shit to me. If they tell you oh its fine don't worry about it. Uh yeah don't trust that get a second opinion to get some kind of valid answer but yes she has been going to the hospital week after week just to make sure her body is working functionally along with making sure she takes care of her kids as well. But yes she seemed very nice and I hope she gets the treatment that she needs asap. It was nice to meet someone that actually understands what Lupus is. And on my way home since all the schools basically released all the kids and it was horrible traffic just to get home in my portable shopping cart that I can take with me shopping. I walked with it I "carefully" dropped it down and guess what the wheel did. The back left wheel bent inward and I'm like fuck! I had to fix it very quickly and wobbled it all the way home. I am not happy about that I'm cheap and I paid $20 for that thing. |
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About this Dragonfly WarriorMy name is Miriam and I have chronic illness that is invisible to others. My autoimmune disease is called Mixed Connective Tissue Disease (MCTD) and I have Fibromyalgia. This is my page of my journey of how I am progressing. We are the warriors of the butterfly under this mask, |